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Strength.
Support.
Hope.
A community built to support Dravet Syndrome families.
A Glimpse of a Dravet Family
In a heartfelt video, Spank Horton and Jenece Bond share their deeply personal journey of raising their daughter Taylen, who has been diagnosed with Dravet Syndrome.
They candidly discuss the challenges and triumphs they face daily, highlighting the resilience and strength required to navigate life with a child who has a severe form of epilepsy. Through their story, Spank and Jenece emphasize the importance of community support, medical advancements, and unwavering love in managing Taylen's condition. Their experience is a poignant reminder of the relentless hope and dedication that parents of children with special needs embody.
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